Easter Lunch

A big test of my IE is always lunch round my Mum and Dad's with the family. This year all my closest family were going to be there, and I was really looking forward to it. My 24 year old daughter who lives an hours drive from my Mum's was expecting me to pick her up, but there was a really bad snow storm, so o/h went instead, while I and my son helped round Mum's. I phoned my daughter to tell her that we really thought she should stay over with us as the weather was so bad.
Unfortunately this sent her into complete meltdown. She has a rare genetic syndrome Cornelia de Lange Syndrome http://www.cdls.org.uk/ and this sadly has effects on her behaviour at times .
O/h managed to get her to calm down and come round Mum's after all (she began to say she wouldn't come at all!) I think she enjoyed herself, and had actually agreed when she had calmed down that she would stay over, as the weather was quite dangerous. (Health and safety is one of her 'things!')

However after her cousins had left, and the weather had cleared up, she started to feel really unwell and decided she wanted to go home, so o/h took her (another long drive!).
It was a real shame, and I felt that the day was a bit spoiled, for me anyway. She has developed a real obsession with one of her housemates, and doesn't like to be very long away from him, which is causing quite a few problems for her.

Why I have written all this is to help myself I suppose. It's not easy having a handicapped child, and what people don't realise is that the responsibilty goes on for a lifetime.
Also we have worked really hard for her to be independent and to want to live away from home, so can't really complain when she expresses her independence.

It has made me a bit sad though. But I am not using food to stuff down my feelings like I used to.

Its All Good.

Everything is fine, just not had a lot of time for writing on here, and I haven't has a lot to say.